The Boy Whose Skin Fell Off (2004)
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
- Data di uscita
- 2004-03-25
- TMDB
- 7.4 / 10 (9)
- Durata
- 50 min
- Generi
- Documentario, televisione film
- Regista
- Patrick Collerton
Cast
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