На кончиках пальцев

На кончиках пальцев (2015)

Nadia Kuznetsova is 28 years old, she lives in Veliky Novgorod, graduated from school and University here, and dreams of going to the sea - and getting her fingers back. Nadia has a rare genetic disease-epidermolysis bullosa, which is called "butterfly syndrome". The patient's skin is injured by any touch. The disease is incurable: as Nadia herself says, "I don't fight it – I live with it." She is fighting for something else - to lead the life of an ordinary person.

Date de sortie
2015-11-01
Durée
1 h 9 min
Genres
Documentaire
Réalisateur
Сергей Нурмамед, Dmitry Kurchatov

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